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Written by Dr Sunder Rao Bethapudy

Leprosy is a disease of our time - a disease of poverty, here you will find links to other international sites that work in the area of the erradication of Leprosy.

 

Cardinal Léger Institute (Health)

In 1962, Cardinal Léger founded this Endeavour, originally called Fame Pereo, to help people with leprosy. Today, it is continuing the fight against leprosy, primarily in India and Haiti. 
http://www.leger.org/

Center for Economic and Social Rights (CESR)

CESR, which was established in 1993, promotes the universal right of every human being to health and a healthy environment, education, food, housing, work and adequate standard of living.
http://www.cesr.org/  

Damien-Dutton Society for Leprosy Aid

Founded in 1944, the Damien-Dutton Society for Leprosy Aid, Inc, is dedicated to freeing the world of leprosy. It was named after Father Damien, the priest, who cared for people with leprosy on the island of Molokai, Hawaii, and Joseph Dutton, who assisted him. It presents the highest award for service to anti-leprosy work.
http://www.damien-duttonleprosysociety.org 

enable

This UN website focuses on the rights and dignity of persons with disabilities and is the official website of the Secretariat for the Convention on the Rights of Persons with Disabilities.
http://www.un.org/disabilities/   

Latest developments are reported in the UN enable newsletter:
http://www.un.org/disabilities/default.asp?PID=312  


Global Partnership for Disability and Development

Accelerating the inclusion of people affected by disability and their families into development planning so that their needs are included in the policies and practices of developing countries around the world is the aim of this partnership.
http://gpdd-online.org/index.php

Global Project on the History of Leprosy

The aim of this project, which was initiated by the International Leprosy Association and funded by the Nippon Foundation, is to assemble a database of archives on leprosy from around the world. http://www.leprosyhistory.org/

 

ILEP

ILEP (The International Federation of Anti-Leprosy Associations) is an international federation of fourteen autonomous non-governmental anti-leprosy organisations, or organisations with a strong emphasis on leprosy. Membership of ILEP enhances the capacity of these Member Associations to work towards the common goal of a world without leprosy.  ILEP promotes and facilitates co-operation and collaboration between its Members, by co-ordinating their support to leprosy programmes, representing their common interests and providing technical expertise to the Federation, its Members and other parties.

http://www.ilep.org.uk/en/

IncludeEverybody

This website highlights the fact that although one in five of the world’s poorest people have disabilities they were excluded from consideration when world leaders discussed and planned the Millennium Development Goals in 2000.
http://www.includeeverybody.org/   

International Association for Integration, Dignity and Economic Advancement (IDEA)

Established in 1994, IDEA is an international human rights and advocacy organization whose leadership and membership is primarily composed of persons affected by leprosy. Today there are over 30,000 members around the world. IDEA’s primary aim is to end the effects of discrimination, isolation and stigma people may feel, because they have, or have had, leprosy, and to restore their confidence, dignity and self-respect.
http://www.idealeprosydignity.org/ 

International Disability and Development Consortium (IDDC)

This is a consortium of international NGOs who support disability and development initiatives and who work in partnership with disabled persons, their organisations and local communities.
http://www.iddcconsortium.net/joomla/


International Leprosy Association (ILA)

Founded in 1931, this is a professional society for scientists, physicians and individuals and organisations in related areas working to understand and relieve the problems associated with leprosy. Its primary aim is to provide up-to-date, medically and scientifically accurate information about this disease. Between 1933 and 2005, it published findings, news and reviews in the International Journal of Leprosy and Other Mycobacterial Diseases. Approximately every five years it helps to organise International Leprosy Congresses.
http://www.leprosy-ila.org/

Le Bulletin de l'Association des Léprologues de Langue Française

This journal is published quarterly in French by the Association des Léprologues de Langue Française, the French professional organisation for those with an interest in leprosy.
http://sfdermato.actu.com/allf/index.html


Legs to Stand On

This is an innovative effort of international partners that combine forces to confront three of the most significant barriers to improving lower limb care in low-resource settings: lack of qualified health care workers and their inequitable distribution; the rapid rise in impairments and premature death from secondary complications of chronic diseases and limited economic resources.
http://www.legstostandon.org/Who/who.html

Leprosy Mailing List (LML)

The Leprosy Mailing List was started to enable people to be able to share and divulge information remotely by e-mail about leprosy. The following link is to the archives of the LML:
http://www.aifo.it/english/resources/online/lml-archives/index.htm 


Leprosy Review

Leprosy Review is the leading medical journal specifically about leprosy, produced to contribute to a better understanding of this disease.
http://www.leprosy-review.org.uk/


Making it Work (MIW)

The Making it Work initiative is a global multi-stakeholder initiative to promote effective implementation of the Convention on the Rights of Persons with Disabilities (CRPD), which came into force on 3rd May 2008.
http://www.makingitwork-crpd.org/


Nepal Leprosy Trust

The Nepal Leprosy Trust is a UK-based Christian agency that provides services to people affected by leprosy in the Kingdom of Nepal.
http://www.nlt.org.uk/


Novartis Foundation for Sustainable Development

This Foundation promotes sustainable development by bringing together different partners from all the actors in society, including the public sector, to develop joint contributions to solve health and poverty problems. It is sponsored by the pharmaceutical company Novartis and draws on its scientific knowledge to inform its decisions.
http://www.novartisfoundation.org/ 


St Francis Leprosy Guild

St Francis Leprosy Guild's purpose is to help leprosy sufferers throughout the world. It is a registered charity raising funds mainly from donations and legacies, and distributing to leprosy centres in the third world.
http://www.stfrancisleprosy.org/


Source

Managed by Handicap International, this online international resource centre provides free access to resources on disability and inclusion. Primarily for academics and practitioners, the collection ranges from books and journals, to manuals, toolkits, posters, audiovisual materials and websites. Many materials are from developing countries and include published and unpublished literature.
http://www.asksource.info/


Support for People with Hansen's Disease

Created as a support network in 2001, its website provides a forum through which people can share their experiences of this disease, including the challenges and particularly those caused by stigmatisation.
http://www.hansensdisease.org/index.html


telederm.org

This website allows dermatologists, general practitioners, students in medicine and other health care workers, for example, to share opinions and expertise about interesting cases of leprosy, other tropical diseases and dermatology. 
http://brazil.telederm.org/


The Leprosy Mission

The Leprosy Mission is a development organisation that focuses specifically on leprosy and is part of the Leprosy Mission’s worldwide family.
http://www.leprosymission.org.uk/


The Nippon Foundation

The Nippon Foundation was established in 1962 by Ryoichi Sasakawa. Since 1975 it has been helping people affected by leprosy, channelling its efforts both through the World Health Organization and some ILEP Members.
http://www.nippon-foundation.or.jp/eng/


UK Coalition against Neglected Tropical Diseases

This Coalition, of which ILEP is a Member, is a collaborative partnership between UK organisations actively engaged in the implementation, capacity building and research of neglected tropical disease control at scale.
http://www.ntd-coalition.org/

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